I really don't want to be blogging about something so sad, but this is also my little girl's journal, and reflux is such a big part of her sweet life.
We made a trip to Covenant Women's & Children's for Grey's Upper GI test today. (Sooner than originally planned, just to be safe.) She (and I) did NOT like the fasting part. Definitely one of the worst parenting moments to date, watching my daughter beg me for food. Whew...I'm still recovering, and seeing this picture makes me upset all over again. :'(
look how red that precious little face can get! :(
I wanted to photograph the experience for her journal (and Daddy to see), but I was too busy trying to not cry as hysterically as my daughter was while feeding her the barium bottle. I am very thankful Upper GIs are painless procedures; my heart absolutely goes out to and aches for all of the parents of sick kids/kids with cancer who have to endure painful procedures. The entire process was actually very interesting and would have been "cool" to me if my daughter was replaced with a dummy doll on that X-ray table. Once again, I was impressed with Covenant's amazing staff. They were wonderful with Grey, and put me at as much ease as they possibly could have.
only photo I snapped before I was holding her hand for the procedure. I just love seeing my babies' names! :)
Praise God her results were "normal", meaning she does not have pyloric stenosis. I know I will be sleeping better this weekend knowing she doesn't have a life-threatening condition causing the vomiting and screaming. For now we are just back to hoping her prescription and normal reflux solutions (sitting up, small meals, sleeping elevated, watching my diet, etc.) start to make some big changes for her.
From now on I am going to do my best to enjoy each moment to the fullest. Reflux is difficult to put on a 'back burner', but I will make a conscious effort to focus on the good!
I am ridiculously grateful for the friends of mine who have walked the "reflux road", and have let me whine, moan and gripe to them. Their patience and "been there" suggestions and stories have been tremendously helpful to me.
I believe Grey is our little gift in every way possible, and that reflux is going to be part of what strengthens her. She has a strong will, and I pray it will be used for Christ's sake...
The LORD sustains them on their sickbed and restores them from their bed of illness. Psalm 41:3
Three times I pleaded with the Lord to take it away from me. But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness." Therefore will I boast all the more gladly about my weaknesses, so that Christ's power may rest on me. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong. 2 Corinthians 12:8-10
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She is perfect! I look at these pictures of Grey and at the same time remember Holden. You have had such an amazing and inspiring journey. I love being apart of it.
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